OpenPseudonymiser

Open Pseudonymisation Workshop Resources

We held a workshop in Nottingham University on 22nd Sept 2011 involving a large number of organisations interested in developing an open specification for pseudoymisation across the NHS. The presentations for the workshop are below.
If you would like to be involved in further discussions, please email julia.hippisley-cox@nottingham.ac.uk with your name, organisation and a short summary of your interest in the topic.

Title of presentation	Speaker
Welcome, introduction and objectives for the day	Julia Hippisley-Cox
Session 1: Why Pseudonymisation - current perspectives
Making the Information revolution come true - role of pseudonymisation	Ian Herbert (British Computer Society Health)
Patient perspective	Terence Wiseman (patient representative NIGB, ECC)
Ethics and Confidentiality Committee (s251) perspective	Natasha Dunkley (approvals manager NIGB,ECC)
Legal perspective	Mark Taylor(Sheffield Law Dept, NIGB, ECC)
Policy Perspective  - provisional outcomes from the IG workshop	David Riley (Information Standards Board)
Session 2: Current technical approaches to pseudonymisation and data linkage
Trust Data Linkage Service (IC/HES)	Xanthe Hannah (Information Centre)
Research Capability Programme approach	Alan Barcroft (RCP/Dept Health)
General Practice Research Database approach*	John Parkinson (GPRD/MHRA)
Sapior Ltd approach	Rob Navarro (Sapior)
THIN approach	Alison Bourke (THIN)
Royal College of General Practitioners approach	Douglas Fleming (RCGP)
Manchester e-Lab project	John Ainsworth (Manchester University)
The Open Pseudonymisation project	Julia Hippisley-Cox (University of Nottingham & QResearch)

* Presentation not available. Please contact John.Parkinson@mhra.gsi.gov.uk directly.

As a result of the workshop, delegates are working on a set of consensus statements relating to the role of pseudonymisation.
To contribute to the survey please visit http://www.surveymonkey.com/s/KJ6Q23B